Thursday, March 20, 2014

ISO: Immune System

I really must apologize for the radio silence. For a minute there life had started to resemble something rather normal. Brooklyn started school again, her hair is growing back and she now sports a pretty adorable little crown of curls, treatment has slowed way down and we are able to get out there into the world and live like a normal family. We even welcomed two new members, Maple & Ginger, into our family! Aren't they the sweetest?


Perhaps it is that I overestimated the simplicity involved in Long Term Maintenance, or maybe I am just THAT good at jinxing us, but then came the dreaded cold and flu season. Since the beginning of February we have had three lengthy hospital stays for viral infections and one bacterial infection. It's been exhausting and stressful and daunting all at once. If you know anything about viruses then you would know that they can not be treated, you just have to ride them out. The bacterial infection, Cdiff is a tough one to get rid of and required 15 days of treatment just to finally kick.

As of last Friday we are back in the hospital. At first they were certain it was sepsis and even began treatment for it. But the results of her cultures are back and she doesn't have sepsis. We are on day 14 with no immune system whatsoever, however today her bloodwork showed a rise in white blood cells which means an immune system is in the horizon. 


We are all ready to go home. This particular stay has really taken it out of us all. The back and forth, the long monotonous days, the maddening attempt to tackle responsibilities out in the real world while being trapped inside of a hospital. Also the fact that there is little time to spend together as a family. 

At any rate, I know we will make it through this. It's really just a matter of rebuilding her immune system and getting her through this season. Please send out some good vibes that her blood counts will be on the rise tomorrow!



One last thing! Over the past month we have had a ton of friends and family come to our rescue (and offer to help!), whether it be to pick up and watch baby Indie at a moments notice, or stop by the ER with a late night meal when we were utterly desperate, or even to pop in for a visit with snacks and toys to brighten our day. I really want to thank everyone for your help in getting us through this. I honestly do not what we would do without you all and it's really an amazing feeling to know that we are not alone in this.

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